var editData = {"errorMessage":"","dataLines":"C-BIG Repository\t\"Lydiane Gaborieau, Mahdieh Tabatabaei Shafiei, Marie-No\u00eblle Boivin cbig_management.mni@mcgill.ca \"\tMcGill University \/ Montreal Neurological Institute\t3801 University Street, Suite 207, Montreal QC H3A 2B4\thttps:\/\/www.mcgill.ca\/neuro\/open-science\/c-big-repository \tMotor neuron disease (SMA\/ALS); Peripheral neuropathies (CMT); NMJ disorders (MG\/CMS); Myopathies\/muscular dystrophies; Mitochondrial NMDs; Inflammatory Myositis, iPSC cell lines\tYes\tYes\tYes\tYes\tYes\tNo\tYes\tNo\tWhole blood; PBMCs; Skeletal Muscle; Peripheral Nerve; Urine; Saliva; CSF; Skin (fibroblasts); Brain tissue (for patients undergoing neurosurgical intervention)\tResearch; Diagnosis; Biobanking\tClinical; Molecular; Imaging; Genetic\t\"Data and samples are listed in the C-BIG data portal: https:\/\/cbigr-open.loris.ca\/ Requests for tissue can be made through portal MTA: We have an 'Open Transfer Agreement' to facilitate the transfer of materials to collaborators outside of McGill University Do you have an ethical committee approval for your biobank\/biorepository: Yes Context of samples used: Research; Industry Collaboration\"\tThe Neuro\u2019s C-BIG Repository is an Open Science collection of biological samples, clinical information, imaging, and genetic data from patients with neurological disease as well as from healthy control subjects. This platform was created to allow patients to actively participate in advancing our understanding of the diseases affecting them, and reflects the vision of Dr. Penfield when he founded The Neuro. Data and samples collected in the C-BIG Repository will be made available to research teams with scientifically and ethically valid proposals around the world, congruent with Open Science principles.\tOSM\t45.572744\t-73.586295\nCREATION\tDr. Cynthia Gagnon; Professor; cynthia.gagnon4@usherbrooke.ca; 418-695-7700 #2756\tCIUSSS du Saguenay-Lac-St-Jean\t930 Rue Jacques-Cartier E, Chicoutimi QC G7H 7K9\tN\/A\tMyopathies\/muscular dystrophies; ARSACS; OPMD\tNo\tYes\tNo\tNo\tNo\tYes\tNo\tYes\tWhole blood; Cells; Tissue (muscle); Urine; Saliva\tLongitudinal studies in ARSACS, OPMD and DM1\tClinical; Molecular\t\"Restriction on access: no but we have an access policy. MTA: Yes. Do you have an ethical committee approval for your biobank\/biorepository: Yes Context of samples used: Research; Therapeutics\"\tThe Groupe de recherche interdisciplinaire sur les maladies neuromusculaires (GRIMN) has launched in 2017 the CREATION Biobank: Clinicians, Researchers and Expert patients Alliance for Therapeutic Innovation on Neuromuscular disorders. The CREATION Biobank was created to allow researchers and clinicians worldwide to access large databases of phenotypic variables and associated biological samples to propose new research questions and foster collaborative projects with the GRIMN. The CREATION Biobank is a unique structure to foster research collaborations on neuromuscular disorders. The biobank has been developed with the idea of sharing datasets and biological samples from previous research projects conducted by the GRIMN and its partners. \tOSM\t48.422807\t-71.034267\nBanque de donn\u00e9es et de mat\u00e9riel biologique des maladies neuromusculaires et autres maladies apparent\u00e9es (BDMB-MNM-MA)\tDr. Elise Duchesne, Associate Professor; elise1_duchesne@uqac.ca; 418 545-5011, poste 6148\tUniversit\u00e9 du Qu\u00e9bec \u00e0 Chicoutimi \/ CIUSSS du Saguenay-Lac-St-Jean\t555 Boulevard de l'Universit\u00e9 Est, Bureau PO-5350, Saguenay QC G7H 2B1\thttp:\/\/www.uqac.ca\/portfolio\/eliseduchesne\/ \tmyotonic dystrophy type 1, autosomal recessive spastic ataxia of Charlevoix-Saguenay and healthy controls\tNo\tYes\tNo\tNo\tNo\tYes\tNo\tNo\tTissue\tResearch; Biobanking\tMolecular\t\"MTA: Yes Do you have an ethical committee approval for your biobank\/biorepository: Yes, the management framework is approved for each project using or contributing to the biobank. Context of samples used: Research\"\tFounded in 2013, the Banque de donn\u00e9es et de mat\u00e9riel biologique des maladies neuromusculaires et autres maladies apparent\u00e9es (BDMB-MNM-MA) contains samples in the trust of Dr. \u00c9lise Duchesne which belong to the patient, hosted at the CIUSSS Saguenay-Lac-Saint-Jean Biobank. \tOSM\t48.411430\t-71.049827\nCHU Dumont Biobank\tSt\u00e9phanie Crapoulet; Biobank Senior research coordinator (manager\/lead); stephanie.crapoulet@vitalitenb.ca; 506-862-4221\tDr. Georges-L.-Dumont University Hospital Center\t330, Universit\u00e9 Avenue; Moncton; New Brunswick; E1C 2Z3\tN\/A\tMotor neuron disease (SMA\/ALS); Myopathies\/muscular dystrophies; Mitochondrial NMDs\tYes\tYes\tYes\tNo\tNo\tNo\tNo\tNo\tWhole blood; Tissue; Saliva\tResearch; Biobanking\tClinical; Molecular\t\"MTA: Yes Access Requirement: REB approval and scientific oversight committee approval Ethical Committee Approval: 25 May, 2017 Context of samples used: Research; Biobanking\"\tThe CHU Dumont biobank is an umbrella biobank, founded in 2017 with the pilot approved for the Tumoral branch, with the Neuro branch gaining approval in 2019. The biobank is located at the Dr. Georges-L.-Dumont University Hospital Center in Moncton, NB. The biobank collects tissue and saliva samples from patients with Motor Neuron disease, myopathies and muscular dystrophies, and mitochondrial NMDs.\tOSM\t46.098268\t-64.787422\nNeurobiobank\tDr. Mathieu Blais, Project Manager; mathieu.blais@crchudequebec.ulaval.ca; Dr. Nicolas Dupr\u00e9, PI\tCHU de Qu\u00e9bec - Universit\u00e9 Laval\t10, Rue de l'Espinay, Qu\u00e9bec QC G1L 3L5\tN\/A\tMotor neuron disease (ALS); Ataxias\tYes\tNo\tNo\tNo\tNo\tYes\tNo\tNo\tCells (skin cells, iPS cells derived for PBMC); Tissue\tResearch; Biobanking\tTBD\tAccess Requirement: To become a collaborator.\tFounded in 2005, the Neurobiobank is located at the CHU Qu\u00e9bec. The biobank collects cells and tissue samples for Motor neuron disease and ataxias.\tOSM\t46.827249\t-71.237020\nPfeffer lab biobank\tDr. Gerald Pfeffer MD PhD; Assistant Professor; gerald.pfeffer@ucalgary.ca; 403-210-3926\tHotchkiss Brain Institute, University of Calgary\t3330 Hospital Drive NW ; Calgary; Alberta; T2N 4N1\thttps:\/\/hbi.ucalgary.ca\/profiles\/dr-gerald-pfeffer \tMotor neuron disease (SMA\/ALS); Peripheral neuropathies (CMT); NMJ disorders (MG\/CMS); Myopathies\/muscular dystrophies; Mitochondrial NMDs\tYes\tYes\tYes\tYes\tYes\tNo\tNo\tNo\tWhole Blood, Serum, Primary Fibroblasts, Muscle Tissue, Oral Microbiome\tResearch\tClinical; Molecular; Imaging\tContext of samples used: Research\tFounded in 2016, the Pfeffer lab biobank is located within the Hotchkiss Brain Institute at the University of Calgary. The biobank serves its regional population, and collects whole blood, serum, primary fibroblasts, muscle tissue, and oral microbiome samples spanning a broad array of NMDs.\tOSM\t51.066593\t-114.132823\nBC Children\u2019s Hospital Biobank\tVeronica Chow, BioBank laboratory manager; veronica.chow@cw.bc.ca; 604-875-2000 #7497\tBC Children's and Women's Hospitals and Research Institutes\t938 28th Ave W, Vancouver BC V5Z 4H4\thttps:\/\/www.bcchr.ca\/biobank\tMotor neuron disease (SMA\/ALS); Myopathies\/muscular dystrophies\tYes\tYes\tNo\tNo\tNo\tNo\tNo\tNo\tWhole blood; Cells; Tissue; Urine; Saliva\tDiagnosis; Biobanking\tClinical; Molecular; Imaging\t\"MTA: Yes ethical committee approval for your biobank\/biorepository: Yes Context of samples used: Research; Diagnosis; Biobanking\"\t\"(https:\/\/bcchr.ca\/sites\/default\/files\/group-biobank\/biobank-fact-sheet.pdf)) Information video: (https:\/\/www.youtube.com\/watch?v=UxTJRon-oEw&ab_channel=BCCHBioBank) The BC Children\u2019s Hospital BioBank collects and stores pediatric biological samples such as tissue and blood and their clinical information from children with a variety of diseases for researchers to access once their studies have ethical approval. To apply for samples, fill out an application form (http:\/\/www.bcchr.ca\/biobank\/research) and submit to biobank@cw.bc.ca. The BioBank is open to researchers all over Canada and worldwide! In addition to storing biological samples and clinical information, the BioBank offers many other services including consenting, processing, clinical data entry, storage, and processing.\"\tOSM\t49.245532\t-123.125227\nCanadian Inflammatory Myopathy Study (CIMS)\tDr. Marie Hudson, Associate professor, McGill University Physician-scientist, Jewish General Hospital and Lady Davis Institute; marie.hudson@mcgill.ca; 514-340-8222 x25408\tLady Davis Institute\t3755 Cote Ste Catherine, Montreal, QC, H3T 1E2\t\tAcquired inflammatory myopathies (including inclusion body myositis)\tNo\tNo\tNo\tNo\tNo\tNo\tYes\tNo\tTissue; Muscle biopsies; Stool\tResearch; Diagnosis; Biobanking\tClinical\t\"MTA: Yes ethical committee approval for your biobank\/biorepository: Yes Context of samples used: Research; 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